Keep Hope Alive At The 2009 Avia Wildflower Triathlon
An Opportunity to Be a Match and Save a Life
Posted: Wednesday, April 22, 2009
Imagine that your baby's only hope for survival depends on a stranger signing onto a registry that most people don't even know exists. Trevor Kott, my son, never had a chance to live because doctors could not find a suitable bone marrow donor. The saddest part is that most people aren't even aware how easy it is to register as a donor and save a life if matched to a patient whose survival depends on it. That's why Team Trevor, an organization I founded in honor of my son, will be hosting a bone marrow registry drive at the Wildflower Triathlon this May.
Trevor Austin Kott was born a perfect, eight-pound baby boy on Oct. 14, 2006. The next day, our world came crashing down when a rash appeared over his body and he was diagnosed with leukemia. Doctors told us he would survive only two days, or maybe two weeks if we were lucky. Trevor beat the odds, going into remission with the help of chemotherapy. At four months old, however, Trevor relapsed, and his only hope for survival was a bone marrow transplant.
Earlier tests had revealed that Trevor would have a difficult time finding a match because of his rare tissue typing. Only 30 percent of patients find a matched donor within their families, and we were heartsick to discover that Trevor's sisters were not suitable matches for him. As parents who would do anything to save our son's life, we reached out to the local community for help, having enlisted more than 14,000 people to date in the Sacramento, Calif., area to sign up as potential marrow donors through BloodSource. Unfortunately, Trevor's bone marrow match was not found, and Trevor lost his life at six months old.
Trevor's enormous spirit lives on in Team Trevor's commitment to spread awareness about the need for bone marrow donors so other families will not lose loved ones due to lack of a match. Every day there are thousands of patients searching for a match. Could you be the key to saving someone's life?
Joining the National Marrow Donor Program is a very simple process involving 10 minutes of paperwork, a swab of the inside of your cheek and a thoughtful commitment to donate bone marrow or blood stem cells if you are found to be a suitable match. Be a hero, give hope and grab the opportunity to save someone's life in this very special way.
Please keep Trevor's legacy alive by volunteering to be a bone marrow donor. The marrow registry drive at the Wildflower Triathlon is being generously sponsored by a fund that was set up to honor Trevor. Please look for the Team Trevor/BloodSource booth at the Wildflower Triathlon this May and take advantage of this special opportunity to get swabbed and registered as a potential donor. For more information on marrow registry, local opportunities to register or to sign up online, visit Marrow.org. For more information about Team Trevor, visit TrevorKott.com.